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Hard but Good

Hard but Good

With rheumatoid arthritis and fibromyalgia, I've stopped expecting life to be easy long ago.

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“You think you have no energy now? Just wait…” I am nine months pregnant with my first child and I'm scratching my head as to why this well-meaning person thinks this a helpful thing to say to me. And she’s not the only one. I’ve had dozens of lovely people tell me that life as I know it is over. I will never sleep again, etc. Are they worried I expect motherhood to be easy?

I smile politely at all of their advice but inside I am torn between annoyance and laughter. Many of them don’t know me well enough to realize that I stopped expecting life to be easy long ago.

When I was 21 I was diagnosed with rheumatoid arthritis, a chronic autoimmune disease that causes inflammation in all of my joints, as well as overall fatigue. Not long after I was diagnosed with fibromyalgia, a syndrome in the same “family” as RA that causes muscle pain and tension, and, you guessed it, overall fatigue. There are other symptoms as well, but the bottom line is that I am never without pain and my energy levels are depleted quite easily.

So easy is not something I’m overly familiar with.

I wanted to hit the person who told me, "Pain is inevitable. Suffering is optional." But gradually I realized how empowering it really is.

The emotional and physical adjustments to these circumstances took me years to come to terms with. I started dating when I was 20, long before I was ready, and had a broken engagement when I was 26. This challenge was a blessing in disguise, as it got me into therapy with a wonderful therapist with whom I worked for several years. At the age of 31 I met my husband, who is incredibly supportive and essential to making my challenges much more manageable (and a terrific guy to boot).

We married a couple of months before I turned 32, and after several difficult medication adjustments, I got pregnant. I was incredibly grateful to get pregnant so soon after we started trying. But it has not been an easy pregnancy. Months of not being able to keep food down, increased pain in multiple areas, an even greater loss of energy and sleep…not easy.

But hard doesn’t have to mean bad. One of my favorite sayings is “Pain is inevitable. Suffering is optional.” Of course, the first time I heard it, in the midst of a painful arthritis flare up, I wanted to punch the person who told me it in the face. But gradually I realized how empowering it really is.

Now when I say gradually, I mean gradually. I remember about five years after my diagnosis, right after my broken engagement, I was in a dark place. I was still showing up to work, but only a few hours a day. The rest of my days were spent catching on the sleep I lost because of staying up all night watching tv. I’d watch anything and everything, whatever would block out my pain, both physical and emotional. And then one night, not even the tv could block out my agony (or maybe it was just that there was nothing good to watch. God works in mysterious ways). And I thought, Is this what my life is going to be from now on? Am I going to look back at my life as an old lady and see nothing but a series of television shows? Surely, I can do better than that? I have a lot to give if I can stop making it all about my pain.

I threw myself into giving to others, through my work at the nonprofit organization Jewish Learning Exchange. I started to really give my therapy a shot instead of just going through the motions. I found myself again when I put myself aside. There is a seemingly contradictory truth from the Torah that the way to self-actualization is through focusing on others. You give in order to grow. And when it’s hard to give, you give anyway.

With a challenge of this magnitude, you're never over it.

Life brings pain. All kinds of pain. But we have the freedom to choose our response to that pain. I can smile through it, laugh around it, and see the beauty in spite of it. I choose my focus. I often wonder how different a person I would be if I hadn’t been faced with these challenges. Would I have grown in the same way if I had had an easy, carefree life? I honestly doubt it. It is an interesting balance of praying that my difficulties get better and yet simultaneously doing all I can to rise above them.

I don’t believe with any challenge of this magnitude that you are ever really “over it”. I grow in my acceptance over time, but there will still always be days here and there when I am struck anew with the pain of it, the struggle, the loss. But those days pass, as again I remember, I choose my response. I am a happy person, and even those who know of my health issues don’t realize the full extent of them.

So motherhood. Another challenge. A different type of hard. Bring it on.


Postscript: My wonderful daughter is now 11 months old and a constant source of joy. Even when she’s screaming her head off and we’re crying together and my body feels like it’s falling apart, there is an everlasting ember of joy glowing in my heart knowing that I am a mother, after all this time.

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Visitor Comments: 8

(8) jim, January 10, 2017 3:15 AM

you are right on all the way!

hope and pray you and yours have easy times more than any other kind, stay strong.

(7) Nancy, January 8, 2017 8:46 PM

Help for your pain

Your story was inspiring! Enjoy every moment with your precious baby & wonderful husband. Chronic pain is so debilitating! I've started seeing an Upper Cervical Chiropractor who uses the Blair Method. You might gain some relief. I would highly recommend finding a chiropractor in your area who specifically works on the cervical neck exclusively. Your consult should be free & if the DC doesn't think he/she can help you they won't take you on as a patient. All the best.

(6) GS, January 8, 2017 8:40 PM

So real and so useful

Your pain forces you to be incredible every day, and I salute your triumphs. But no Jew deserves to suffer I would love to hear that G-d healed you, now that you've "grown" so much. I wonder if you heard of a photon genius machine that works with infrared rays. I've recently heard from a practitioner that it a phenomenal healing tool (alternative healing) for fibromyalgia. I can provide some details on request.

(5) Ra'anan, January 8, 2017 5:01 PM

blessings

of strength, energy & pleasure in your family & your family in you!!!

(4) ARI, January 8, 2017 4:17 PM

Help for your RA

I had advanced and aggressive RA which I treated through a magnificent Ayurvedic doctor (ancient Indian medicine). Miraculously, according to my Rheumatologist my RA factor and SED rate are almost normal now (all without any western medications). If you would like to know more, please ask Aish to put you in touch with me as they have my email from this psot.

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