Dear Lauren,
We are two girls in 8th grade. We’re friends with each other, and we both are friends with a girl in our class who’s in a wheelchair. We like this other girl, and we enjoy being friends with her. The thing is, that it sometimes gets to be too much for us. For example, she talks to us all the time about how hard her life is, and how it hurts her to walk, and how sad she is that she can’t do things. She could talk to us about it for hours, and late into the night. We really have to go to sleep, but we feel so bad for her! So we let her talk to us until really late. Sometimes we’re tired in school the next day because we stayed on the phone with her, trying to be there for her. Also, it’s really hard to always hear how down and sad she is, and how hard everything is for her.
Another thing is that she doesn’t like to go outside for recess. We feel bad for her, so we stay inside with her. If we don’t stay inside with her, she gets really annoyed. She also doesn’t think it’s fair that the rest of the class does a dance with our school song. She’ll say, “It’s so mean! Everyone else is dancing and I can’t. They shouldn’t be dancing!” We wonder if maybe we shouldn’t dance? We’re just not sure what to do because we like her, but she’s overwhelming us a little.
Lauren Roth's Answer
She’s overwhelming you a little? It sounds like she’s manipulating you a lot.
I’m allowed to say this without sounding insensitive because I had a sister in a wheelchair for 40 years: don’t let your friend get away with murder just because she’s in a wheelchair.
Don’t give in to bad behavior just because you feel bad for someone.
Pretend your friend were not wheelchair-bound. How would you react to her behavior? It’s important not to give in to bad behavior just because you feel bad for someone. It’s not good for you, and it’s not good for her.
My parents were very careful not to give in to my handicapped sister’s temper tantrums just because she was handicapped. That would have been such a disservice to her—teaching her that she can get her way by crying and screaming? They wouldn’t do that to their other children, so why should they do that to her? If we feel sorry for someone, and through our feeling sorry for them, we enable them to do bad things, what kind of a friend are we? Being a good friend (or a good parent) means calling someone on their bad behavior so they can improve it.
When I was a teenager, they gave us bumper stickers that read: “Friends don’t let friends drive drunk.” I’ll borrow the sentiment and tell you: “Friends don’t let friends learn that they can behave badly to get their way just because they happen to have a physical disability.”
It is kind of you to treat your friend with disabilities the same way you would treat any other friend. People learn how to behave and how not to behave based on others’ reactions to them. If every time person X hits people, nobody ever says, “Hey! You can’t do that! It hurts, and I don’t like it!” person X would never learn that hitting causes distress to others. Person X would continue hitting others, and people wouldn’t like him very much. But if you told person X “That hurts! Stop it!” or if you stopped being his friend once he hit you, and if all his friends did that to him, one after another, eventually person X would learn that hitting doesn’t get friends. That’s a service to your friend. Friends don’t let friends behave badly.
Giving in to your friend and staying in for recess with her and listening to her sad stories until all hours of the night isn’t teaching her that she’s overwhelming people. If you never teach her, then she won’t learn that lesson from you, and she will continue to overwhelm people and lose friends until someone finally tells her or shows her. Why not be the one who helps her see that she’s alienating friends?
It’s very important to do chesed—to do kindness for others. In fact, the verse in the Torah says, “Love your fellow person as you love yourself.” We are obligated to be kind to others. But notice the “as you love yourself”! We have to take care of ourselves first. In order to have the strength and the stamina to take care of others, we have to take care of ourselves, and then treat others as well as we treat ourselves. Not going outside for recess is not taking care of yourself. Staying up too late because your friend is talking to you about her sadness and pain is not taking care of yourself. Yes, you should talk to her and listen to her, but there have to be boundaries whereby you take care of yourself, as well.
I think you should listen to her for a few minutes when she starts complaining, empathize with her, validate her feelings, then say, “Can we talk about something else now?” And when she doesn’t want to go out for recess, I would say, “Come on out with us!” If she refuses to, just kindly say, “Are you sure? We’d sure love to have you out there with us in the fresh air!” If she still refuses, then tell her, “Well, we’ll see you in a few minutes, then. We have to get some fresh air!” Then go outside (and don’t feel guilty!).
A friend of mine was pregnant, and her due date is January 24, 2015. BUT she already had the baby—four months ago! Yes, her baby was born five months early. He weighed only one pound when he was born. (He’s actually doing quite well now, thank God.) Needless to say, this baby is still in the hospital. So my friend goes to visit him every day. And there is a couple who lives near the hospital whose “kindness strength” is bikur cholim—visiting the sick. This couple goes to the hospital every single night and reads books to my friend’s baby, and says Shema with him. Picture this: my friend said the husband, who is a successful lawyer, will read Curious George to the baby by putting his mouth right up to the hole in the incubator, then show the baby the pictures. What a beautiful thing to do!
Here’s the part that’s relevant to your question. My friend said: “This couple figured out which kindness they’re really good at, which kindness they love to do, and they’re good at doing. Instead of trying to do a million and one types of kindnesses, and feeling overwhelmed, they realized what they love to do, what they’re good at doing, and they do it so well.”
If you guys had written to me, “We love listening to our friend until all hours of the night. We love staying inside for recess! We just want to make sure it’s ok for our friend,” I would tell you, “It’s not good for your friend to be taught that she can manipulate to get her way.” But you’re also telling me that you feel overwhelmed. That’s not taking care of yourself. You should do kindness for others. LOTS of it. You should even do kindness when it feels uncomfortable. But you shouldn’t do kindness in a way that overwhelms you on a regular basis. That’s not following the dictum “Love your fellow person as you love yourself.”
So, to recap: 1.Treat your friend in a wheelchair just as you would a friend not in a wheelchair. 2. It’s kind to teach friends when they are hurting us/overwhelming us/annoying us, etc., so they don’t continue doing that to us and to others. 3. We are supposed to take care of others, and we are also supposed to take care of ourselves. God created us, too, and we are obligated to take care of that creation, as well. Yes, we must do kindness. It is of utmost importance. And kindness starts with taking care of the caretaker—ourselves—so that we have the wherewithal to continue to care for others.
It’s a hard balance to work out, and I give you both a lot of credit for thinking about and wondering what the right thing is.
(17) Malka, February 26, 2015 6:33 PM
Forgive me, but being the sister of a person in a wheelchair makes one LESS able to speak "insensitively" about this, because of the very real issue of sibling rivalry. I am not disabled and I did not grow up with anyone disabled, but I have had disabled children as well as healthy children.
True, you should not allow your empathy for a person in a wheelchair to allow them to manipulate you or overwhelm you, BUT, it is NOT true that you should treat them EXACTLY as any other friend.
People who are at any social disadvantage are aware of it and are more sensitive and more easily hurt. It is written that one must be careful not to hurt the feelings of any person in a painful or difficult life circumstance (specifically it says a widow or orphan, and I think it was Rashi who extends this to any person in a difficult/painful circumstance, such as a poor person, etc.).
You have to set limits with them just as described in this article, but do it gently. That's all I'm saying.
(16) Elizabeth, January 7, 2015 10:23 AM
Personal experience of wheelchair
Like another commenter, I'm also 70 years old and have been in a wheelchair since a near-fatal car crash in 1983. My friends and family have always been wonderful to me, and I don't feel left out when they want to go off and do something I can't take part in such as running. I take the chance of being alone as a gift, and use my solitude to read, meditate, listen to music, and so on. My guiding principle is that I don't want to be a burden to anyone; by this, I mean a psychological burden. I know those who love me don't find my physical needs burdensome, but if I were to interfere with their own able-bodied recreations then I would be a psychological burden. Likewise with going over and over how I feel. I don't do this because it's counter-productive. Self-pity isn't part of my emotional vocabulary. I have nothing to complain of, because all my deepest needs have been met and I have the most wonderful spouse and family who love me just as I am. In fact, I'm currently publishing a book on this very subject, which I hope can help others in my situation and those who care for them. Much love to the little girl in the wheelchair.
(15) Anonymous, January 7, 2015 9:07 AM
The little girl in the wheel hair needs some sun on her skin, to be in the fresh air too
The little girl in the wheel chair needs some sun on her skin, to be in the fresh air too, this is essential for her health if she is not getting Vit D3 supplements.
(14) Tiferet, January 7, 2015 6:39 AM
Life goes on
Maybe tell her about the woman I work with. It sometimes helps to see or hear about someone that is worse off. This woman is confined to a wheel chair, needs to be fed and taken care of just like a baby. But she loves to go out and even dances. Last year I took her to a dancing event and (she can't talk), I thought that she wanted to go home. It turned out that she wanted me to turn her around in the wheel chair, dancing! We dance at weddings and bar mitzvahs. Hope your friend will want to participate in life despite her difficulties.
(13) Raphaelle Do Lern Hwei, January 7, 2015 5:56 AM
This is a very good idea!
Having to deal with seniors of varying physical and emotional challenges at work, I really appreciate this article.
Life is not about what we cannot do, but what we can do and how that fits in with the people around.
(12) Moshe, January 7, 2015 2:43 AM
Great Article
One of my best friends since I was in Elementary School is in a wheelchair, and he's one of the nicest people I know. We always treated him as just one of the guys, and he almost never asked any more from us other than the occasional push up the hill to shul. He could be doing all the things described here, and he would likely be justified in doing so, but he doesn't. The truth is though, that we do give him much more.
It is often said, based on the Gemara about Dovid and Yehonatan ben Shaul, that the mark of a true friendship is how much you look to give to the other person. We all do give a lot to my friend, but it's not because he asks for it. It's because of how much he gives to us as a true friend that we feel we must help him.
(11) Beverly Margolis-Kurtin, January 7, 2015 1:35 AM
No, no, no!
I hate to sound cold, but due to osteoarthritis, I'm in a wheelchair. Of course I am older, but I don't hobble my friends by asking them to pity me, nor would I permit them to do so.About the only time that I have to inconvenience them is when we go out to eat or go going to a concert or the such. I MUST use my van and do the driving. I have to get my chair in a van and use a ramp. I sure can't do that in anyone's car. If your friend insists on hogging your time together, she is being RUDE and nerds to know that. You girls have the right to share your problems too. Try asking the non-disabled friend how HER day or school work is going. Don't let the other friend try to take over, you two sound l like wonderful friends, if she doesn't get the idea, have an adult work with you and her. Frankly, the only time I allow myself to get upset is when a total stranger SHOUTS at me to slow down or get a speeding ticket. Girls, I'm over 70 but still feel like I'm a teen and have fun which means I go 6 miles an hour even with my manual chair. I go up to the person who said what they did and tell them "Oh, wow, NOBODY has ever been so rude as to try to make me feel like an idiot!" Then I ask to see their driver's license because they just broke the law: You belittled an elder and one who is disabled at that. Now I don't know if there is such a law, but It is so much fun watching them squirm that I can't resist . I really don't mind, I'm way to old for that, but just because I'm old, doesn't me that I still don't love to have fun.
mambo, January 23, 2015 1:36 AM
just trading
I use a wheelchair, when someone says something aout my "speeding" I have alwys just presumed they are teasing. I do not take offence or try to mke them feel badly.
(10) Anonymous, January 6, 2015 10:38 PM
friend in a wheelchair
Growing up in a school with no one else in a wheelchair or special ed with others can be lonely but, a teacher or counselor can help her or him find a hobby or interest, like music or art. I enjoyed school after that. Eventually one finds ways of adaptation and even good friends with the same interests.
(9) Marlene Langert, January 6, 2015 7:19 PM
Some disabled take advantage
I had an acquiantence, in her sixties, who was in a motorized wheelchair. I went to a healer in Brazil with her. I realized she had gotten used to preferencial treatment. She was taken aboard the planes first. She would go to the head of the line in the ladies room and most everyone would let her in. I could have gone with her, but I would not. What I was thinking is, "All of you are standing. SHe is sitting. She can wait." SHe yelled at the attendents on the plane when she was not taken off first although she was only one of several who needed wheelchairs. THey took the others off while putting hers together because she did not want any parts of the airlines wheelchairs, only her own.She was confined to the chair in her 40s or 50s as a result of MS. SHe had had the privilege of growing up not handicapped.
I am afraid these well meaning young ladies are training another young girl to become a woman like this one. You girls are doing good, but too much can be disabling in other ways. G-d bless you both for caring so much, but care enough to cut down and let her know why. If not, maybe she will never have friends after you too because no one will like her if she keeps on developing this attitude.
Beverly Margolis-Kurtin, January 8, 2015 7:41 PM
Sometimes
Disabled people usually do not ask for favorable seating, etc. I much rather drive to wherever I have to go even if it is a couple of thousand miles. I'll do anything to avoid the rude mentally challenged TSA agents. However, when I have to fly, I just wait in the back of the "crip" line. When the light attendant sees me, she boards me first. The false folks in the disabled line holler and yell, but the attendant puts them in their place. "This lady is in a wheelchair, she gets preferential boarding," then she smiles like a Cheshire cat.
when I go to an amusement park, I get to go up the exit ramp because i cannot possibly walk up the stairs. Then I board the amusement first. The yelling and moaning of the non-disabled really amuses me especially when the person who is loading the ride tells them to shut up, do they expect me to climb up stairs, just be happy they're not disabled.
Mind you, I do NOT ask for preferential treatment,intelligent people see that I require it.
I am a former electronic columnist. I'd sit with the other writers and ONE of my fellow columnists would CONSTANTLY gripe that the disabled parking spots was giving the disabled favorable treatment. I told him WHY it was necessary. Prior to disabled parking, I had been hit TWICE by drivers who weren't looking. The first time I had to leap off the chair while the moron drove over my $6,000 Quicky wheelchair. He wasn't even going to stop! Other drivers forced him to stop while I waited for an ambulance they held him for the police. The second time, the driver DELIBERATELY AIMED FOR ME! It is a weird world out there.
Fortunately, another driver saw what was almost going to happen and cut the guy off.
Now that disabled parking is available, I don't have to cross dangerous areas.
P.S. Yes, I preferred charges against both driver.
(8) Anonymous, January 6, 2015 5:50 PM
Right on the money!!!!
What a beautifully written and insightful article. It's somuch better for everyone when appropriate boundaries are set. Giving too much hurts both the giver and the taker. Although some of the ideas here may sound counterintuitive to a nation such as ours whose signature is chesed, in the end with a situation like this , this self destructive behavior on BOTH sides can not result in a happy ending. I'm glad you brought your sister up in the article, because it sounds like that was a catalyst for developing healthy boundaries. Yasher Koach
(7) Gloria Constantine, January 6, 2015 5:25 PM
Friend in wheelchair
Maybe they all need to read the Helen Keller story, if not all ready familiar with it. If they are, a refresher would be good.
(6) Anonymous, January 6, 2015 4:44 PM
Listen, empathize, and then remind her of her strengths
I have a teenage relative who has a number of medical and mobility challenges. She's often upbeat and enthusiastic, but there are times when she wants to talk about how sad she is that there are so many things she can't do. When she does that, I listen and acknowledge her feelings, (it's important to do this first!) and then remind her of all the things she is able to do and how strong she is to have overcome many challenges and come as far as she has. These kind girls may wish to try that with their friend, as well as talking to her about what's going on in their own lives, so she can learn to be interested in others and that friendship is a two way street. Also, I like the idea of inviting their wheelchair bound friend to go outside to recess, but once there, they may need to figure out what she'll do while all the other kids are running around. Maybe they can get a ball and play catch with her or spend a little bit of time wheeling her around the playground. I agree with those who have suggested talking to the teacher or school social worker about this and trying to get a professional adult to help this girl through her pain and sadness. I also agree that the girls should set a time limit on nighttime phone calls and suggest that they say kindly that their parents have given them a phone curfew and they have to go to bed. If they can set appropriate limits, then their friendship with this girl will be a true mitzvah!
(5) Bobby5000, January 6, 2015 4:33 PM
The same with parents
I was a volunteer for a gentleman in a wheelchair. His well-intentioned mother dictated many things he did and when I wanted to take him to shows and events, she raised objections saying he needs to take his medicine, how will he get to the bathroom. On two occasions, the showed worked wonderfully. Ultimately I was resigned because she wanted me to do volunteer activities which were uninteresting but safe, while I wanted to expand his horizons and let him enjoy life even if that involved some limited risk.
To the extent possible, you want to treat disabled people like those without them, and that extends to the parents of the disabled.
Beverly Kurtin, January 7, 2015 1:48 AM
I'd have loved to have been there
I am a very independent 74year-YOUNG woman who is in a wheelchair. NOBODY tells me what to do. I'd have put that woman what for.
I used to attend a stroke recovery group but could not stand the way the "therapist"tried to keep the people crippled.
I was told that I would never walk, talk, or work again. Uh huh... I went back to work six month after I survived a massive hemorrhagic stroke. They did their worst to cripple me, but it wasn't until almost ten years that my back caused me to get into a chair, not my stroke.
(4) Chavie, January 6, 2015 3:30 PM
Hi Lauren! I love this article! It's especially good for one of my sons. I will have him read it. He is extra careful with other's feelings and sometimes allows himself to get hurt in the process. You articulated this concept with such sensitivity that I think he will be able to accept it.
(3) Anonymous, January 6, 2015 1:39 PM
seek help
I would also recommend speaking to the teacher, principal or social worker at school. The child in the wheelchair sounds like she can use some guidance in dealing with all of her negative feelings.
(2) A, January 5, 2015 6:49 PM
Important points that were missed
It is very important that you explain the shift in your behavior to your friend in an empathetic way. The notion that she is being manipulative shouldn't change your attitude, she hasn't been taught and does not realize or mean to be so. Teach her - kindly. Take care of yourself - and talk to an adult about getting her help to work through depression.
(1) Anonymous, January 5, 2015 12:31 AM
Doing a mitzvah in the long run
These 2 young girls are really doing a mitzvah when they set parameters for their friend. Being in a wheelchair is not a license to manipulate people. Also, I LOVED reading about the couple who visit your friend's baby. :-)